Friday 11 January 2013

In My Head

Blogging in my head, exchanging glances... Blogging in my head, decreasing  my chances... Blogging in my head, of reaching you......

Songs are ALWAYS stuck in my head. You too? Plus, I always have a song for every occassion. I tack them on to the ends of people's sentences. I think that's what I get for spending most of high school sitting around listening to music and singing along to the words on the backs of the album covers. Now you have to download the song and then go to lyricsfreak,com and sing along. It's just not the same. Technology....

It's been a busy week and I've had so many ideas to write about. But I've forgotten them all. Short term memory loss is a euphemism for what I feel like is really going on here. Thoughts bounce around in my mind, I wish I had a fly stripe in there to catch them. Especially as I walked to the Royal Free hospital and back everyday this week to get my Azacytadine shots. Such a lovely walk and so many good thoughts.

Today was day five. Two rounds down, 22 to go.  It's a start. I tried to negotiate with Dr. Giralt. Could I do it every six weeks instead? Or for less than two years?  I'm only sayin' because it brings back all my chemo crankiness: itchy, restless, sleepy, heartburn, all that stuff.  And I know that for two years it's no big deal if it prevents relapse, but it also just keeps me remembering.  Now I  only want to think of how normal everything is. Because it is. Or a least getting normaler (I know that's not a word). But Giralt was a no go. No negotiation. But that we could reassess when I see him in February. So I signed my email back to him "Ok. Love, Cranky".  It's the least of his worries, I'm sure.

My father is turning 91 on Jan 25. Isn't that amazing? There's no answers. Our friend's sister just died from an auto-immune disease. She was diagnosed just before me. She was In her 50's. Three kids. I can't stop thinking about it. I just want to fix it all. Take it away.  Arggh!

I made a sick joke at the health food store today. I was so happy being in there. I like health food stores. I told the salesperson I had had a transplant and I was looking for a good multi-vitamin, etc... So as she's ringing me up she asks, " how long is a bone marrow transplant suppossed to last?" And I replied back in my best American accent, "I should be good for a really long time, as long as I look the right way when I'm crossing the street in this city..."

G'nite
D




1 comment:

  1. Nyuk nyuk nyuknyuk! A SICK joke in a HEALTH food store. That's funny. A stranger in a strange land where one must cross the street "from right to left" as it were.

    Congratulations on your normaler life after transplant! I am sorry about the itchy crankies. It's uncomfortable not being able to feel yourself due to medical stuff.

    Longevity, along with puns and other notable talents, runs in our family as a general rule. So "Hurray hurray!" for Poppo turning 91 in 13 days. Awesome.

    Enjoy the more mundane and everyday pursuits. We know that these in fact are the true luxuries.

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